Lived experience Committee
We are an international committee with people who have experienced living with a personality disorder, alongside their family, friends and carers.
About us
We are the advisory committee to the ISSPD board, comprising passionate advocates from around the globe. Though in our early stages, we are committed to fostering diversity and international participation. Our focus is to integrate the perspectives of individuals with lived experience and their carers from various regions and backgrounds.
By uniting voices worldwide, we create a platform for sharing and learning. This collaborative exchange enriches research and strengthens international advocacy efforts.
Ultimately, we aim to ensure that individuals with personality disorders and their carers are met with compassion, care, and support that aligns with evidence-based practices. We strive to influence policies and practices to create a more understanding and supportive environment for everyone affected.
Committee Members
Chair
Kimberly Hickey
Boston, USA
Co-Chair
Peter Heggie
Sydney, Australia
Member
Marsha McAdam
United Kingdom
After receiving life-changing mentalisation-based therapy (MBT), and with the support and recognition of those working with her, Marsha embarked on a venture to use her lived experience to inform policymakers and clinical staff and support service transformation in both physical and mental healthcare.
More recently, Marsha has initiated, organised and led a national Personality Disorder and Stigma project with key UK clinical, voluntary sector and policy leaders. Marsha occupies important advocacy and advisory positions including as an Ambassador and Peer Consultant for Centre for Mental Health, is the Vice Chair on the NHS Confed’s Mental Health Network and is the Expert by Experience for Equally Well UK.
She has sat on some of the most transformative boards and panels, including being a member of the governments Mental Health Act Review Team, a founding member of the Speaker Collective and the Lived Experience Group for Equally Well.
Marsha is also a national speaker on matters such as parity of esteem, personality disorder, stigma and discrimination. Having the opportunity to help others enables Marsha to remain positive and is essential to her wellbeing.
Member
Rita Brown
Melbourne, Australia
Rita is also employed as an Associate Director Lived Experience Workforce and Advocacy/ Carer Consultant for Spectrum: specialising in Personality Disorder and Complex Trauma based in Melbourne, Australia where she draws on her lived experience of being a ‘carer’ to support other family members and regularly facilitates peer to peer interactive workshops for carers.
Member
Christella Dwyer
United Kingdom
Christella is the founder of FACTS (Families and Carers Training Support), a teaching course for families and carers of young people in association with Anna Freud, and leader of Harrow BPD Carers support group. she is based in the UK . She has also participated on parent and carer advisory boards for individuals supporting people with BPD, and volunteers on NHS mental health support services. She is passionate about improving mental illness services and carer-led support services.” Lately volounteers for her local NHS trust on Check in and chat, where referrals are offered 8 calls to support them. All of these things are life lines for people.